Les Athlètes au quotidien d'une maladie rare et orpheline

Described at the end of the XIX century by Doctors Strümpell and Lorrain, Familial Spastic Paraplegia was to remain unexplained for many years. Because it is extremely rare, Strümpell-Lorrain disease is, in fact largely unknown to the general public. However, in the past five years alone, many of the people suffering from the disease in France have come together to form an association. Active in this country, in Europe and in contact throughout the world with other national associations, its goal is to keep abreast of progress in research, and supply ample information to all those concerned : the families and their support-groups, medical and paramedical staff and society as a whole.